The controversial NHS Care.data patient information-sharing scheme has been scrapped, the government has confirmed.
In a statement, minister for life sciences George Freeman MP has said that “NHS England has taken the decision to close the care.data programme”. He added that the Government remained “absolutely committed to the benefits of sharing information” to improve patient outcomes and that therefore work would now be taken forward by the National Information Board.
The announcement follows hot on the heels of the publication of National Data Guardian Dame Fiona Caldicott’s long-awaited report on NHS patient data security.
Mr Freeman said the decision had been taken because the report recommended that the Government consider the future of the care.data programme ‘as the consent and opt-out model proposed by the review goes further than the approach that was planned for care.data and its pathfinder areas’.
His statement read: “In light of Dame Fiona’s recommendations, NHS England has taken the decision to close the care.data programme. However, the government and the health and care system remain absolutely committed to realising the benefits of sharing information, as an essential part of improving outcomes for patients.
“Therefore this work will now be taken forward by the National Information Board, in close collaboration with the primary care community, in order to retain public confidence and to drive better care for patients.”
The care.data scheme to extract GP patient records, and then link them with information held by other parts of the NHS for non-care uses, was pulled on 18 February 2014, just days before it was due to go live in March.
Report found that GDS has successfully reshaped government’s approach to technology and transformation, but there remains a risk it is trying to cover too broad a remit with unclear accountabilities
Q&A: Enfield Council’s Geoff Waterton explains his journey when collecting arrears using an innovative solution
Geoff Waterton, Head of Collection at Enfield Council, recently participated in an Agilisys webinar to share his experience of adopting an innovative income generation and debt collection solution.
Council’s first ‘Open Data challenge’ looked for innovative ways of using data for the benefit of Camden residents
The potential to improve outcomes by putting the citizen at the heart of how digital solutions are designed is significant